Arthritis Ireland

Support for people affected by arthritis. Includes a juvenile arthritis programme, workshops, publications, exercise groups.


Asperger Syndrome Association of Ireland

Aspire provides support to those with Asperger Syndrome and their families .Services include a helpline, regular conferences, setting up of support groups, regular newsletters…


Aims to optimise asthma control through support, education and research


Autism Initiatives Group

Family Initiatives Project: Provides support to the families of children with Autism Spectrum Disorders.   It is a parent-led project which aims to offer a combination of advocacy, information, education, training and supports for families of children with Autism and Aspergers Syndrome.


Brainwave– Epilepsy Ireland

Brainwave provides support and information to people with epilepsy and their families. Services include a specialist nurse helpline, raising awareness, promoting civil rights of people with epilepsy, providing practical aids, assisting in the development of support groups



Brain injury support and information



Brittle Bone Society (UK)

Offers support to people affected by Osteogenesis Imperfecta. Online forum, information sheets


Family Carers Ireland

is Ireland’s national voluntary organisation for and of family carers in the home


A voluntary organisation representing people with cystic fibrosis in Ireland. Aims to increase knowledge and awareness and give advice and support to people with CF and their families.22 branches throughout Ireland (Website has an online forum)


CLAPAI (Cleft Lip and Palate Association of Ireland)

Voluntary support organisation offering support and information to parents of children with cleft lip and palate including advice on feeding and ongoing medical care


information and support for people affected by coeliac disease


Deafblind (UK)

Offers support to deafblind people and their families.Magazine for members.National centre for deafblindness in Peterborough


Deafhear has a national network of resource centres providing a range of accessible services to deaf and hard of hearing people and their families.It also advocates and lobbies for improved services


Information and support to all people with Down syndrome and their families.


Provides information on dyslexia, summer schools, seminars and conferences01 679 0276


Support and advocacy for people with dyspraxia and their families. Telephone helpline, information packs and newsletters for members, regional support groups, promote awareness of the condition


provides general information and advice about fibromyalgia.Website includes a list of support groups


Friedrichs Ataxia Society of Ireland

Support for people affected by a genetic ataxia and their families.Organise regular social functions. Liason officer available.


HADD (Hyperactivity, attention deficit disorder)

A support organisation made up of parents and professionals working to raise awareness and offer support information and advice


Community based rehabilitation services for people who have been affected by acquired brain injury. Services include psychology, therapy, employment services, support to families affected by ABI.


Heart Children Ireland

Practical help and support for all individuals and families affected by congenital heart disease. Services include setting up local groups, financial assistance, publications, special events for children.


HemiHelp is a UK-based charity for people with hemiplegia and their families.


Ichytosis Ireland

National parent support group for parents of children with ichytosis


Inclusion Ireland

Support for people with intellectual disabilities and their families. Promotes advocacy and self advocacy to enable people with intellectual disabilities to live the life of their choice to the best of their ability. Provides information and advice, leaflets, newsletter


Irish Deaf Kids

Aims to support inclusive education for deaf children in mainstream schools in Ireland while empowering parents to develop their child’s full potential


Irish M.E. Trust

Provides an information and counselling service to people affected by M.E.


Irish Tube Feeding Association

Offering support and information to people who are tube feeding and their families





ISA (Irish Stammering Association)

Encourages self help support groups and parent support network.Offers advice and information


IWA (Irish Wheelchair Association)


Marfan Syndrome Support Group Ireland

Support for individuals affected by Marfan Syndrome


Branches throughout Ireland offering support, friendship and care to people with a mental illness and their families Aims to promote positive mental health and actively support those affected.


The Irish MPS Society

Acts as a support network for those affected by MPS and related diseases.Also aims to raise public awareness and promote and support research into MPS.


Offers family support, network of family support workers, respite services, youth activities, support at clinics, newsletters


NCBI  (National Council for the Blind in Ireland)

Provides support, information and services to people who are blind or visually impaired. Services include local community advice, information on technical aids, a Braille and large print library, assistive technology…

1850 33 43 53




Neurofibromatosis Ireland

Offers family support, counselling service, newsletter, fact sheets, activities for children and teeagers


Restricted Growth Association (UK)

Support and information to people and affected by genetic growth conditions resulting in dwarfism and their families


SBHI (Spina Bifida Hydrocephalus Ireland)

Offers family support through network of family support workers, youth and respite services, advocacy, social gatherings, publications, national resource centre and orthopaedic footwear centre


 Scope (UK)

Offers support and information to people and families affected by cerebral palsy and associated impairments. Active forum on website


Sotos Syndrome (Ireland)

Support group

Contact: Sandra Pedreschi

01296 0206


SOFT Ireland

Provides support for families of children born with Patau’s Syndrome (Trisomy 13), Edwards’ Syndrome ( Trisomy 18) and related chromosomal disorders. Provides information, funds bereavement counselling, booklet and newsletters.


Tourettes Syndrome Ireland

Provide support to those with this condition,raise public awareness and counter media stereotypes.


Rare chromosome disorder support group


Williams Syndrome Association of Ireland

Offers support to individuals and families through annual conferences, social gatherings and regular newsletters


22q11 Ireland

Help and support for individuals and families affected by 22q11.2 deletion/DiGeorge Syndrome/VCFS